IQVIA Prometheus Partnership Conversation Health Information Technology
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Senior Member 108 posts Lindsey Galli LindseyGalli Senior Member 108 posts
Lindsey Galli LindseyGalli
Please take a moment to review the attached slide deck that Prometheus presented at the HIT PFAC meeting this month and respond to the following questions:
  • We understand a key charge of yours is to achieve the perfect patient portal. What does that mean to you?​
  • We recognize there are hot-button HIT topics for patient advocacy organizations with health systems. Based on your experiences, could you share some of these topics and your suggestions to address them?​
  • Interoperability: USCDI – for the foreseeable future it is going to miss a lot of specialty data. Have you given any thought to the best ways to collect specialty data?​
  • How can we continue to be a resource for the National HIT Advisory Council?
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CompassionateSpeaker Junior Member 10 posts
CompassionateSpeaker

I thoroughly enjoyed IQVIA-Prometheus presentation. To answer the first question is to restate what I and many others said during the meeting- the perfect patient portal needs to portable, accessible, adaptable and a tool that allows ease of communication between provider and patient. Also, it should have a security feature that ensures safe transmission of all information along with a place for patients and families to provide open and closed ended responses that can be videoed, keyed in or just voice activated to accommodate the needs of all patients. Plus, this device needs to have educational diagnoses material installed that reflects or looks like all patient populations served. So even the graphics need to have people of color in them. 

My response to the second question is the hot button issue at the healthcare system where I serve is how do we ( the Care Team) alert the patient in a thoughtful way when the labs or test results are an indicator of poor outcomes on MyChart while taking into account the results may cause increased worry for the patient. Do we generate an extra note through MyChart to let them know a healthcare practitioner will be contacting the patient in 24-48 hours ( if it is really bad news this could seem like an eternity to the waiting patient and family) to further discuss test results or do we wait until the patients contact the practitioners’ offices. What is the best way to handle a poor report that must be provided and is generated by technology instead of hearing this message from another human which may reduce alarm when the news is NOT good. We have not found a way to do this yet and benefit from technology, simultaneously.  I would love to know how other healthcare systems have worked through this process.

For question number three, I do not have response at this time. However for question number four, I think IQVIA-Prometheus and the National Health IT Advisory Council can continue to partner always taking into account the patient and family perspective when aiding in software and technology development for healthcare systems and nonprofits. It will be beneficial to keep all abreast of data and research barriers and triumphs that directly impact patient care as regulations and data breaches alter the healthcare landscape.
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MyTwoCents Junior Member 1 post
MyTwoCents
Question: 1) The perfect portal, is easy to use, comprehensive, contains all of my relevant medical data, links my data to other health systems and physician systems.  It needs to be portable/downloadable.  Would like  links to reference material and resources.  Would love to have the ability to talk directly to my doctors something more than the messaging feature.  Would like the ability to correct inaccurate information or supplement medical information. 

Question 2) Patient-Pathologist-Consultation-Sessions:   This is a growing are and expands the idea of the patient care TEAM.   As a patient, the ability to actually to see your slides and pathology report is empowering.  Then to actually speak directly to the pathologist who read them is transformative for many patients.  There are many health systems piloting this and it has been very well received from the patient community.  Understanding what rights patients have under the CURES act and how health systems are responding to this law is a must as there appears to be variation in how institutions are implementing the new law.   Releasing information to the portal without the ability put it in context can be anxiety provoking until your clinician can address the concerns and/or put it into context. 

Question 3) Need more information on what "specialty" data is.

Question 4)  Struggling with this as I am new to the group.  I am not sure what influence the National HIT workgroup has at the healthcare institution level.
  
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Janice Tufte Janice Tufte Member 47 posts
Janice Tufte Janice Tufte
I was so impressed with IQVIA Prometheus when I first watched their presentation at a Council for Medical Specialty Societies CMSS conference last year so I was pleased to see them share here at our IT group. Thank you for hosting. Wow a lot to take in at once.
1) I believe we covered the patient portal well during the presentation and appreciate reading more here. I appreciate the ability to yearly update my health status adding in comments regarding specific situations. We at KP WA have now added SDoH questions in the portal before visits 2xs a year if not more often (if needed) My photo is in my portal and if I leave a message I receive a response within 24 hours. My labs can be charted to follow back to 2004. I have reminders for important upcoming diagnostic tests and or immunizations. I am able to inquire about a document being signed if needed via portal also.  Of course this is an area where there is always rom for improvement
2) Top Topics?  -
a) Interoperability between health facilities - One chart opportunity not ten my charts    b )Remote Patient Monitoring -APM collected information able to be added to portal-    c) Health Data Security/ Privacy = Where is my data going? Do I own it-Does the health system own it? Does someone sell it?                                                                                          d) Notes readily available
3) Specialty data so if I visit a chiropractor or ortho clinician outside my system how are these data systems talking to one another. Fast Healthcare Interoperability Resources - FHiR is a HL7 standard really moving interoperability along.  The advancement of FHiR is a big deal in health care, that can eventually allow our specialty visits to connect data to one another - with permission/ understandings !  This will allow patients and caregivers easier and better opportunities to stay up with their care (Prometheus were early HL7 involved -adopters)
4) Perhaps PFCC National HIT will be able to be available when you want to run ideas for improvement by a group of diverse IT involved stakeholders. Focus groups and other opportunities for collaboration
Janice Tufte
https://www.janicetufte.com
@Hassanah2017
206.375.6706
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Barbara Kivowitz Barbara Kivowitz Junior Member 13 posts
Barbara Kivowitz Barbara Kivowitz
I regret I was not able to attend this session (recovering from knee surgery).  I have actually been immersed on the clinician side of patient portals like myhealth online.  It is one of the sources of overload and even burnout for clinicians. I have heard that clinicians spend at least 1-1/5 hours on inbox work for every patient contact hour.  I think any technology would need to be accompanied by thoughtful deliberation, and potentially behavior/usage and potentially process/strategy change, so that patients and families get the rapid responses they need without adding to clinician burnout.  This is not an easy conundrum to sort through - but one that perhaps should be part of the discussion.
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